TROP BELLE POUR CE MONDE
TOO BEAUTIFUL FOR THIS WORLD
Interview with Director/Producer Aicha Ghembaza
Congratulations! Why did you make your film?
AICHA GHEMBAZA: I made this film to show the daily life of a severely autistic child. In France, for several years now, a rare form of autism has been the subject of media attention: "the ASPERGERS", and the French are unaware of this neurobiological disorder, while the number of autistic people in the world today is increasing. I want to show through this film that there are several Autism Spectrum Disorders.
And unfortunately in France there is no structure adapted for these children or adults, it is almost impossible to find trained professionals to take care of our autistic children, for most of the mothers, we leave our jobs to take care of our autistic child, we have to find the money to train ourselves, and take care of our children ourselves.
I hope this film is a way to change the prejudices about autism, to ask the President of the Republic for an Autism plan to help these thousands of children and their families.
Imagine I’m a member of the audience. Why should I watch this film?
AICHA GHEMBAZA: This film is a total immersion in my life, a reality that explodes in your face, autism is a serious subject that the world must take into consideration. I consider that there is an epidemic of Neurodevelopmental Disorders and that the world's leaders must take it into consideration, as well as the inhabitants of the entire planet, because we are all concerned.
This film must be seen in order to set up a debate and find solutions together.
How do personal and universal themes work in your film?
AICHA GHEMBAZA: My main theme is autism, severe autism, the hardest, most complex autism. The autism of my daughter, whom I am raising alone.
How have the script and film evolved over the course of their development?
AICHA GHEMBAZA: When I decided to make this film, I wanted to show a reality, a reality of our daily life, an autism that we don’t show, my goal was to make it clear that despite the serious behavioral disorders, we can help our severely autistic child. I wanted us to film louise in her good times and bad times, I brought a cameraman to our home to help me in the realization of this project.
Jérémy Trellu the editor suggested that we use my short films of Louise, very small to show the evolution of the disease when there is no suitable management. I did not know, not in advance how to go this past the week of shooting. I had organized a morning at the Olympic pool, a day with Dad at Cap Ferret, a day with a friend and her daughter and the rest of the shooting I really wanted to show Louise’s daily life.
What type of feedback have you received so far?
AICHA GHEMBAZA: I am impressed by the good feedback I received with this film. the courage to show my daily life because the majority of parents of autistic children keep their children at home. The film has 21 selections and 5 awards.
What are you looking to achieve by having your film more visible on www.wearemovingstories.com?
AICHA GHEMBAZA: I am trying to raise awareness of autism, an epidemic about which we speak little or not at all.
Who do you need to come on board (producers, sales agents, buyers, distributors, film festival directors, journalists) to amplify this film’s message?
AICHA GHEMBAZA: I need everyone, sales agents, buyers, distributors, journalists...
What type of impact and/or reception would you like this film to have?
AICHA GHEMBAZA: I would like this film to change prejudices about autism, to give families the means to live with dignity and to have the necessary help to help our autistic children.
What’s a key question that will help spark a debate or begin a conversation about this film?
AICHA GHEMBAZA: what will become of our children?
Would you like to add anything else?
AICHA GHEMBAZA: SOPHIE JANOIS lawyer wrote this on April 6, 2022 on her face book
So we agree? April 2 was a real disappointment on the political side and it was again the associations that did the work! Autism awareness has been drowned in the flood of news which, it is true, has its share of horrors and distress...
So, I had fun writing the two-minute speech that I would have liked to hear from a candidate 😉:
Today is April 2, World Autism Awareness Day.
Autism affects 850,000 people in France, one in a hundred births. Although these figures deserve to be substantiated. People with autism have never really been referenced. These figures come mainly from international statistics that are well below reality. France has forgotten people with autism just as it has forgotten to take an interest in their number, this is very revealing.
Today, people with autism and their families feel treated like a negligible amount. This must change. This is all the more so since autism is one of the neurodevelopmental disorders that bring together millions of people with attention deficit and hyperactivity disorder (ADHD) and multidys disorders, with fetal alcohol syndrome in particular.
People with neurodevelopmental disabilities need a firm and intractable policy on the respect of their rights.
We only experienced announcement effects. But on the ground, nothing has really changed. Families who believed in a substantial reform are now disillusioned. Worse, they remain in pain, sometimes in terrible pain.
People with autism need to be understood in their invisible difference, accepted with their particularities. Their parents, their carers, need concrete and appropriate help for their child.
This involves diagnosing without delay, training competent professionals in the therapies as recommended by the High Authority for Health, providing schooling, offering the facilities necessary for schooling, ensuring that they are effective, to upgrade the status of AESH, to make medico-social establishments a passage towards a free life and not a prisoner within walls, to control these establishments, to simplify the administrative procedures for orientation or the allocation of allowances. It is about valuing skills and not insisting on differences. It is a question of supporting each autistic profile starting from the possible and not the reverse.
I would like to add that the recurring and stupid problem of holding mothers responsible for their child's disorders must absolutely disappear from both psychiatry and the courts. A mother, a father, must be able to be accompanied effectively and not be made guilty. Promises are no longer necessary, I will act without delay.
I want to hear people with autism, give them and their families a voice, work so that they have what suits them. Because each individual, autistic or not, is unique. I intend to offer them the guarantee of respect for their rights, their freedom, to protect them for the most vulnerable among them."
Here we are, we fill the nothingness as we can!
What other projects are the key creatives developing or working on now?
AICHA GHEMBAZA: I am currently working on another documentary, a long one, on autism with interviews of health professionals.
Interview: July 2022
We Are Moving Stories embraces new voices in drama, documentary, animation, TV, web series, music video, women's films, LGBTQIA+, POC, First Nations, scifi, supernatural, horror, world cinema. If you have just made a film - we'd love to hear from you. Or if you know a filmmaker - can you recommend us? More info: Carmela
TROP BELLE POUR CE MONDE
Length:
15:00
Writer/Director/Producer
AICHA GHEMBAZA
Born in Vienne (Isère), Aicha left her city to settle in the south of France (Marseille,
Corsica, Toulon). She moved to London in 1998 to improve her English and study
technological music. She participated in the development of Techno culture by becoming a
DJ, then organizer of parties in London, and then in Italy and France. She became a DJ
agent in 2001.
Aicha Ghembaza
wants to work for both television and cinema.
For many years she has been involved in the approach and study of the autism spectrum
and takes care of her daughter diagnosed with autism at the age of two and confirmed by
the CRA ( Autisme Resource Center ) one year later.
Aicha Ghembaza wants to make the French aware of the difficulties parents have in
raising an autistic child when there is no suitable structure in France.
Looking for:
sales agents, journalists, producers, buyers
Facebook:
https://www.facebook.com/Trop-Belle-Pour-Ce-Monde-102928361727042
Instagram:
https://www.instagram.com/Louisesarahmercedes/
Where can I watch it?
Melbourne Documentary Film Festival